16
Feb
07

DNR for DOR?

Throughout life its easy to pick up and drop off labels: female, sister, lover, wife, Christian, addict, femme.

Today I have a new label. Hearing the words tore my heart in two.

Diminished Ovarian Reserve (with an egg quality issue)

Simply put my ovaries are about ten years ahead chronologically. Everything else is 34 but I have the ovaries of a woman in her mid 40’s. Dr. Paisan was honest and straightforward finding the balance between total gloom and doom and ridiculous optimism. He believes my only chance is IVF because considering my crap fertilization doing IUIs may just be a waste since we have no idea if fertilization is happening.

IVF #3 has to be a “full court” press: Clomid, 8 amps of meds (either gonal-f/repronex or Bravelle/Menopur), antagonist, ICSI and AH. At this point he will push the envelope and go for maximum embryo transfer. Other than that our only option is donor egg/donor embryo. Baby Sis (not crazy Sis) thought of donating her egg BUT since what I have is probably genetic she may have questionable fertility as well. In fact while she’s only 24, she may have to think about kids now because she doesn’t have the time she thinks she has.

He wanted to do testing: ATA, Chromosome Karotyping, and Fragile X syndrome (go google I haven’t yet) so I gave up four tubes of blood with Mikey next to me. As we waited for a tech I looked at her and said: “I love you. You are enough. We can have a great life just the two of us.” Tears were shed slowly and quietly.

But the real heartbreak came on the way out: The IVF grant will not pay for this kind of protocol and we have exhausted my insurance. Even if we were up for IVF #3 we don’t have the money. We’ve avoided TTC debt and don’t want to go into debt. And we’re too proud to ask.

I am in awe at how many tears I have stored in me right now just waiting for the right time.


12 Responses to “DNR for DOR?”


  1. 1 Bri
    February 16, 2007 at 10:50 pm

    sweetie, i am so sorry. holding you both in the light.

  2. 2 Tamsin
    February 16, 2007 at 11:26 pm

    Oh Sophia honey, that’s just so shitty.
    Sending you & Mikey lots of love xxx

  3. 3 Trista
    February 16, 2007 at 11:30 pm

    Oh! As if I needed another reason to cry today.

    I’m so sorry.

  4. 4 Shelli
    February 17, 2007 at 12:13 am

    oh honey. I’m so sorry – what suck-ass news!

    Love love love to you.

  5. 5 charlotte
    February 17, 2007 at 5:09 am

    I just can’t imagine that you won’t be a mom somehow. I hate that money is a part of this for you. Crappy news. Love to you both.

  6. 6 Mermaidgrrrl
    February 17, 2007 at 8:00 am

    Oh man – this news sucks the big one. Is there any good news or is it all sucky? Although it’s wonderful that you and Mikey are still intact and she’s such wonderful support for you babe xxx HUGS

  7. 7 jenny
    February 17, 2007 at 9:12 pm

    Oh, so shitty! I wish there was something we could do. It is super crappy.

    (hugs) hang in there, we are thinking of you!

  8. 8 Co
    February 18, 2007 at 12:14 am

    Lousy, lousy, lousy. I am so sorry that neither insurance nor the grant is giving you the possibility of a full-court press IVF#3.

    Hang in there. You and Mikey are in my prayers.

  9. 9 Calliope
    February 18, 2007 at 3:27 pm

    fuck!
    this is just wrong. I hate that money is what it all comes down to. It is just not FAIR.
    & I am so so sorry about the diagnosis.
    There needs to be an IVF lotto or something out there.
    sending SO much love you both.

  10. 10 j
    February 19, 2007 at 2:43 pm

    I’m so sorry Sophia.

    Seriously craptastic….I can only reiterate the wishing of being able to do something…

    hugs.

  11. 11 Beth from Rainbow Conceptions
    February 20, 2007 at 3:03 am

    I love you guys and am praying and hoping something can be done and you can do IVF #3.


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